An amazin' & blessed wittle boy who touches the lives of all those around him.
His name is David and if you speak with him you'll understand. If he speaks back to you, it will make you smile. If you sit to play with him, you'll be sure to end up yourself laughing, and if he gives you a hug you will surely melt.

David was born on October 28 of 2005 in the woodsy region of Northern Westchester; Mount Kisco, New York. He arrived kicking and screaming, except for being 2 weeks premature, everything was great. He was also slightly under weight, but we'll discuss that later.

He came home after three days and did well. In about 3 months, he more than doubled his weight. Two months after that he added another third. Strength and awareness were progressing normally.

At 6 1/2 months is when we noticed some minor jerks in David. Usually the arms flailing up and out. Almost like saying pick me up, but his expressions were blank. This appeared occasionally for a few months until the jerks got a little stronger and his expressions slightly tense. All the while our pediatrician told us to disregard it. Muscle spasms are normal for babies who nerves need to settle.

The spasms did go away for a few months and returned at 10 1/2 months. This time a little more frequent and violent as if he thought he was falling.

Now, some time before his spasms returned, we sought second opinions and scheduled some appointments with Neurologists and other pediatricians. The Neurological Specialist was such a specialized practice that it took over a month to see David. Once they examined David, when he was 11 months, they agreed that he should be scheduled/admitted for an overnight neurological examination. This involved having electrodes glued to the head and heart, and basically hooked up to a machine bedside that recorded all neurological/cerebral activity. Again, this practice is so specialized that only two of these machines are available for children at any given time. So David was scheduled for his overnight stay in 6 weeks. Mabel was persistent with the specialists and due to a cancellation, they were able to see David a few weeks early. 1 day after his first birthday.


(ABOVE; David playing with Dr. Know's turtle
at the Beardsley Zoo.)
Now we'd rather not get too much into David's medical history, but this is when he would face the most difficult year of his young life and hardest that his parents have come to know.

NOW FOR THESE FOLLOWING REASONS HE IS SIMPLY AN AMAZIN' WITTLE BOY. This overnight stay raised other questions for David's health, which involved other specialists across several different practices and cities. Now each of these specialists needed blood work at some point. Each of these doctors needed blood from David's frail 12, 13 pound body. Sometimes the lab had to redo a test and required new a new sample, sometimes a doctor wanted a second opinion from a colleague. So you can imagine the horror with four different specialists, including a new pediatrician, and everyone needed to poke at david more than a few times each.

And the short term goal agreed on by ALL, was that David had to start putting on weight. A difficult task when he is giving blood every other week. Not to mention that the medications he was started on were known to reduce one's appetite. Now besides David's first three newborn months he was never a great eater. So at this point, even if he did have a slight appetite he was unable to chew/swallow effectively. His muscle tone became so low that he had to relearn everything-including swallowing and sucking.

David's low muscle tone was a side effect of his seizures-medically labeled Infantile Spasms. Looking back, his body began to deteriorate at that 10 1/2 month mark. In that 1 1/2 month stretch leading up to his first birthday, he regressed significantly unlearning everything before that point.

A month after his first birthday, he began Connecticut's Birth To Three program. Through countless physical therapy sessions and exercises, David slowly built his stamina and began his climb up hill.

By his 2 year birthday, he was making tremendous progress. Nearly able to sit up on his own and drink through a straw. A few of the specialists were even satisfied with his health and out of the picture. The medication doses came down. His appetite robbing anti-seizure medication was changed to something less potent. His communication skills increased and personality began to come through.

At his 2 1/2 year mark, he was fitted for leg braces and began standing and bearing his own weight. Holds his sippy cup when he drinks, and sits on the potty unassisted doing his manly chores. He also has begun to learn and use sign language for different gestures and feelings; "GIVE ME", "MORE", "ALL DONE".

His appetite is strong now, evening lunging desperately at the first few spoonfuls. Through some assistant, he is now holding his fork and beginning to feed himself.

Hence... SIMPLY AN AMAZIN' WITTLE BOY.

David has four therapy sessions a week; Physical, Speech, and Occupational through Connecticut's Birth To Three Program (LEFT; working with Leslie).

When we first entered the program David was labeled as a 'wet noodle'. He had/has low muscle tone, so it takes a little longer for his body and muscles to respond.

As adults we sometimes take the simplest things for granted. The simple act of sitting requires hundreds of simultaneous motions contracting and extracting against one another.

In David's case, he had to first develop a strong neck, followed by square round shoulders, which work closely withthe upper back muscles, then the essential arms that anchor the balance, at that point came his waist, followed by the abdomin (also his ribs had to fall-usually part of the laying to sitting transition), and finally the lower back. Whew! Work, work, work.

Below is David's week-to-week Therapy Schedule:

DAY MORN AFTER EVE
MON - Cathy Mom
TUE - Leslie Dad
WED Mom Dad Mom
THUR Mom Corina Dad
FRI - Susan Mom
SAT Dad Mom Dad
SUN - - -

(ABOVE; David working with Giesel.)

In August of 2008, David got a chance to meet one of his great grandfathers - Don Augustine.

The two of them hit it off very well; with similar day schedules. Both were up by 6:30 am and tucked in bed by 8:30 pm. Only difference being that David liked to watch Curious George in the mornings, while Don Augustine preferred to read the newspaper.

They spent the day together chit chatting and then had dinner at the lonely dining establishment La Mandas in Greenburgh, New York.

At the time of this writing, David was his second great grand child.


(ABOVE; David posing for the camera with his great grandfather at La Mandas restaurant. RIGHT; Later that same evening David played the drum for his great grandfather and parents.)

As you can see, we are truly blessed to have such a wittle boy in our lives. With love any obstacle can be overcome. David may continue to use medications and see the specialists perodically, but he is always progressing and improving, letting the real wittle guy shine through.
one amazin' wittle boy l mama l dada l meme l play dates l school l home
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